We are here to spread love and awareness and to teach that being special needs is nothing to be sorry about



So I was just thinking earlier today I haven't had anything to blog about and update everyone on Harlow has been acting like a normal new born.. soooo looks like I jinxed my self

The passed week or so Harlow has been doing this weird straining twitching thing ether while she is eating or right after she eats she looks like she's in excruciating pain and stretches her self out so she cant bend and we cant bend her legs or arms she throws her head back and just crys and crys well we have been hoping it wasn't anything and would just pass and it wouldn't happen every time so we knew she wasn't allergic to the formula.

Well today she started doing it half way thru her bottle and would not calm down for 20 mins it was the worst I've ever seen it and the twiching was at its all time high so I wasn't sure if made she was having a seizure and it was hurting her and this whole time maybe she's been having them?? anyways we had enough we decided to take her to the emergency room. we got her to calm down to be able to put her in her car seat and because we bought some time we went to Anaheim kaiser because we al know how we feel about riverside..

We got there and they took really good care of us got us in right away and really listened to us and our concerns they had a pends dr come down and sit and talk with us. He doesn't think that it is seizures so he thinks she may be taking in to much air when she eats and its not coming up when she burps so theres a lot of air and pressure in her belly and she's in pain from it...

So if that is the case she needs Therpy for her to eat which I'm ok with as long as she can continue to not have a Gtube. If it were up to riverside they would have put one in her already thank god for our amazing nurse there Joanne ... But anyways we now gotta just push thru until we can get in with the therapist besides her other therapies. Also they gave us some information on how to spot a seizure which is nice because it makes us able to rule out if we think she's having one but say she's still eating its not possible for her to eat and have one and so on so that made me feel a little better.

Were still waiting for our 24 hour EEG but the dr in the emergency room agrees that we need to get on done asap so ill call for the 4th time tomorrow wish me luck...

As for me and bobby were hanging in there. Bobby has to go back to work which is really hard on me because he really helps me esp when im having annoying postpartum moments where I cant be around her so I'm gunna have to suck it up! Also I've been doing days and Bobbys been doing nights (feeding) so its gunna be a adjustment lol I always get up with him at night and I change her but he does the feedings which is nice cus she eats really good and fast with him because she learned with him with me she takes her sweet time!

Other then all that I'm currently working on getting a online shop together of baby's stuff like baby moccasins, pacifier clips, car seat covers, nursing covers, headbands, burp cloths, hope for Harlow shirts etc all the money that is made from the shop will go straight to Harlow's medical and therapy bills so once its open spread the word it would help so much! And will keep me busy which is what I need right now.

Welp I think thats all for now thanks for your continued prayer, love and support it means so much to us <3